tag:blogger.com,1999:blog-8675300842579526998.post6278587937731720053..comments2023-12-24T04:23:14.919-08:00Comments on Our Cystic Fibrosis Life: PseudomonasJodihttp://www.blogger.com/profile/04634046382917519210noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-8675300842579526998.post-52638257721660303552014-03-25T16:54:58.006-07:002014-03-25T16:54:58.006-07:00Thank you for this info. It is always good to hea...Thank you for this info. It is always good to hear from someone who has been through it as we face each new hurdle. Jodihttps://www.blogger.com/profile/04634046382917519210noreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-27785480667112263242014-03-25T02:09:26.074-07:002014-03-25T02:09:26.074-07:00The above comment was from Susan Hitchman Evans. ...The above comment was from Susan Hitchman Evans. <3Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-11119843304004923932014-03-25T02:06:15.273-07:002014-03-25T02:06:15.273-07:00I researched it last night before you posted to yo...I researched it last night before you posted to your blog. Thank you for your further explanation. Each day of life brings something new. Just about the time you have a moment where you think you can take a breath and enjoy.....something ugly raises it's head. Jodi you have my prayers and I will call others on board to pray for Lex's lungs and for mommy and daddy to somehow enjoy life in spite of LIFE.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-34159904974284266532014-03-24T19:02:00.617-07:002014-03-24T19:02:00.617-07:00Ok the comment section did something weird. Know ...Ok the comment section did something weird. Know that prayers and constant good thoughts come Lex's way every day.Anonymoushttps://www.blogger.com/profile/16793227268836595920noreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-60739219862160330942014-03-24T19:00:20.289-07:002014-03-24T19:00:20.289-07:00Jodi you are and always will be Lex's stronges...Jodi you are and always will be Lex's strongest advocate. Keep asking those questions and pushing doctors to do their best. Anonymoushttps://www.blogger.com/profile/16793227268836595920noreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-67308112379575275182014-03-24T18:57:24.444-07:002014-03-24T18:57:24.444-07:00Hi - my daughter is 3 and has CF too. She cultured...Hi - my daughter is 3 and has CF too. She cultured pseudomonas last year (ugh) and did 3 weeks Cipro followed by 3 months of Tobi. She still had a rare growth showing up in her next culture (rare = very minimal) so they did an additional 3 weeks of Cipro followed by 1 month of Tobi. We just got a clean culture last week. Just some other info so you can see how the oral/ Tobi thing happened...Devihttps://www.blogger.com/profile/10246889364711002950noreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-16339719045720614952014-03-24T18:53:52.074-07:002014-03-24T18:53:52.074-07:00Love you guys...praying for Monkey
Love you guys...praying for Monkey<br />Anonymoushttps://www.blogger.com/profile/16585121374646319284noreply@blogger.comtag:blogger.com,1999:blog-8675300842579526998.post-33184530601466862472014-03-24T18:45:18.991-07:002014-03-24T18:45:18.991-07:00Prayers and hugs from my family to yours!Prayers and hugs from my family to yours!Anonymousnoreply@blogger.com